Parents' experiences in dealing with the development of adolescent Autistic Sexuality in West Java Province: A Phenomenological Study

Authors

  • Anni Sinaga Program Studi Pendidikan Khusus, Fakultas Ilmu Pendidikan,Universitas Pendidikan Indonesia, Bandung, Indonesia
  • Achmad Hufad Program Studi Pendidikan Khusus, Fakultas Ilmu Pendidikan,Universitas Pendidikan Indonesia, Bandung, Indonesia
  • Endang Rochyadi Program Studi Pendidikan Khusus, Fakultas Ilmu Pendidikan,Universitas Pendidikan Indonesia, Bandung, Indonesia
  • Imas Diana Aprilia Program Studi Pendidikan Khusus, Fakultas Ilmu Pendidikan,Universitas Pendidikan Indonesia, Bandung, Indonesia

DOI:

https://doi.org/10.59188/eduvest.v4i9.6395

Keywords:

Adolescent Autistic, Development, Sexuality, Parents' Experiences

Abstract

Families who have autistic children may experience a burden in their lives. Little is known about how parents deal with their autistic children who are entering adolescence and are experiencing sexual development. What parents do to deal with the development of adolescent autistic sexuality can be found in qualitative research. The participants are parents with children who are autistic. The researcher contacted the parents and explained the informed consent; if parents agreed, they would sign the informed consent and then decide to place a time to interview the participant with the researcher, interviews with participants from January 2023-March 2023. This study aims to explore family experiences in dealing with sexuality development in adolescents with autism spectrum disorders. This phenomenological study collected data through in-depth interviews with semi-structured open-ended questions of seven child participants with autism spectrum disorders. Eleven themes constructed from this study are shy children when reminded not to hold their genitals, children are distracted when holding their genitals, children going through menstruation, children showing sexual behaviour by opening their pants, children holding their genitals, children hugging their mothers and seek attention, children stimulate themselves and others, children are easily aroused, children cannot distinguish boys and girls children like to clamp their genitals, And the child likes the prone position on the floor. Parents who feel that their child is currently facing the developmental phase of adolescent sexuality independently. They recommend that Parents provide adequate support, including appropriate education and open dialogue about the changes their child is experiencing.

References

Allen, Leora, Leon-Attia, Odelia, Shaham, Meirav, Shefer, Shahar, & Gabis, Lidia V. (2020). Autism risk linked to prematurity is more accentuated in girls. PLoS ONE, 15(8 August), 1–12. https://doi.org/10.1371/journal.pone.0236994

Bowden, Nicholas, Milne, Barry, Audas, Richard, Clasby, Betony, Dacombe, Joanne, Forster, Warren, Kokaua, Jesse, Gibb, Sheree, Hughes, Nathan, MacCormick, Conrad, Smiler, Kirsten, Taylor, Barry, & Mirfin-Veitch, Brigit. (2022). Criminal justice system interactions among young adults with and without autism: A national birth cohort study in New Zealand. Autism, 26(7), 1783–1794. https://doi.org/10.1177/13623613211065541

Cho, Sunghye, Cola, Meredith, Knox, Azia, Pelella, Maggie Rose, Russell, Alison, Hauptmann, Aili, Covello, Maxine, Cieri, Christopher, Liberman, Mark, Schultz, Robert T., & Parish-Morris, Julia. (2023). Sex differences in the temporal dynamics of autistic children’s natural conversations. Molecular Autism, 14(1), 1–14. https://doi.org/10.1186/s13229-023-00545-6

Cummins, Clare, Pellicano, Elizabeth, & Crane, Laura. (2020). Supporting Minimally Verbal Autistic Girls with Intellectual Disabilities Through Puberty: Perspectives of Parents and Educators. Journal of Autism and Developmental Disorders, 50(7), 2439–2448. https://doi.org/10.1007/s10803-018-3782-8

Douglas, Sarah, & Sedgewick, Felicity. (2023). Experiences of interpersonal victimization and abuse among autistic people. Autism. https://doi.org/10.1177/13623613231205630

Gibbs, Vicki, Hudson, Jennie, & Pellicano, Elizabeth. (2023). The Extent and Nature of Autistic People’s Violence Experiences During Adulthood: A Cross-sectional Study of Victimisation. Journal of Autism and Developmental Disorders, 53(9), 3509–3524. https://doi.org/10.1007/s10803-022-05647-3

Kohn, Brooke H., Vidal, Paige, Chiao, Rachael, Pantalone, David W., & Faja, Susan. (2023). Sexual Knowledge, Experiences, and Pragmatic Language in Adults With and Without Autism: Implications for Sex Education. Journal of Autism and Developmental Disorders, 53(10), 3770–3786. https://doi.org/10.1007/s10803-022-05659-z

Libster, Natalie, Kasari, Connie, & Sturm, Alexandra. (2023). Predictors of Sexual Victimization Among Autistic and Non-Autistic College Students. Journal of Autism and Developmental Disorders. https://doi.org/10.1007/s10803-023-06064-w

Libster, Natalie, Knox, Azia, Engin, Selin, Geschwind, Daniel, Parish-Morris, Julia, & Kasari, Connie. (2023). Sex differences in friendships and loneliness in autistic and non-autistic children across development. Molecular Autism, 14(1), 1–12. https://doi.org/10.1186/s13229-023-00542-9

Morais Brilhante, Aline Veras, De Andrade Filgueira, Leila Maria, Uchôa Lopes, Samuel Verter Marinho, Saraiva Vilar, Nathalie Barreto, Mesquita Nóbrega, Lívia Rocha, Verissimo Pouchain, Ana Juarina Magalhães, & Gabriele Sucupira, Luiz Carlos. (2021). I am not a blue angel: Sexuality from the perspective of autistic adolescentes. Ciencia e Saude Coletiva, 26(2), 417–424. https://doi.org/10.1590/1413-81232021262.40792020

Pecora, Laura A., Hancock, Grace I., Hooley, Merrilyn, Demmer, David H., Attwood, Tony, Mesibov, Gary B., & Stokes, Mark A. (2020). Gender identity, sexual orientation and adverse sexual experiences in autistic females. Molecular Autism, 11(1), 1–16. https://doi.org/10.1186/s13229-020-00363-0

Pedgrift, Kathryn, & Sparapani, Nicole. (2022). The development of a social-sexual education program for adults with neurodevelopmental disabilities: starting the discussion. Sexuality and Disability, 40(3), 503–517. https://doi.org/10.1007/s11195-022-09743-1

Pisula, Ewa, Kawa, Rafał, Danielewicz, Dorota, & Pisula, Wojciech. (2015). The relationship between temperament and autistic traits in a non-clinical students sample. PLoS ONE, 10(4), 1–19. https://doi.org/10.1371/journal.pone.0124364

Rashikj-Canevska, Olivera, Nikolovska, Angela, Ramo-Akgun, Nergis, Troshanska, Jasmina, & Chichevska-Jovanova, Natasha. (2023). Thoughts, Attitudes and Experiences of Parents of Children with Disabilities in the Republic of North Macedonia About Comprehensive Sexuality Education. Sexuality and Disability, 41(1), 81–95. https://doi.org/10.1007/s11195-022-09773-9

Sedgewick, Felicity, Hill, Vivian, & Pellicano, Elizabeth. (2018). Parent perspectives on autistic girls’ friendships and futures. Autism and Developmental Language Impairments, 3. https://doi.org/10.1177/2396941518794497

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Published

2024-09-20